Loading Map....
Created By User: | Larry Hardeman |
Date: 04/21/2018 | Time: 8:00 am - 4:00 pm |
Rainout Date: | |
KSU Time: 10:00 am | Bike Fee: $20 |
Passenger Fee: $5 | |
Cages Allowed: ToBeDetermined | Meal Included: ToBeDetermined |
Door Prizes: Yes | 50/50 Drawing: Yes |
Location
Riders Harley Davidson
Destination
Rider's Harley Davidson, Trussville, AL
Categories
Johnson And Johnson Benefit Ride And Event
Host(s): Larry Hardeman, Kelly Cummings
This is a ride/event to help support Jaxson and Madison Johnson, who were both diagnosed with SMA type 1. Jaxson is on permanent life support with a trach and feeding tube. He has been in the hospital 18 times in his 1st year of life.
When Madison was born she spent several days in the NICU. She has been approved for the only medication that is FDA approved for SMA. Each dose she receives requires her to be in the hospital overnight.
- Door Prizes
- 50/50 Drawing
- Food on site
- Live entertainment
- And more
Facebook Link: https://www.facebook.com/events/221502371757474
Organization Link:
Route Map Link: https://tinyurl.com/jaxsonmadisonroute
[Sassy_Social_Share total_shares="ON"]