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Created By User: Larry Hardeman
Date: 04/21/2018 Time: 8:00 am - 4:00 pm
Rainout Date:
KSU Time: 10:00 am Bike Fee: $20
  Passenger Fee: $5
Cages Allowed: ToBeDetermined Meal Included: ToBeDetermined
Door Prizes: Yes 50/50 Drawing: Yes

Location
Riders Harley Davidson
Destination
Rider's Harley Davidson, Trussville, AL

Categories


Johnson And Johnson Benefit Ride And Event
Host(s): Larry Hardeman, Kelly Cummings

This is a ride/event to help support Jaxson and Madison Johnson, who were both diagnosed with SMA type 1. Jaxson is on permanent life support with a trach and feeding tube. He has been in the hospital 18 times in his 1st year of life.
When Madison was born she spent several days in the NICU. She has been approved for the only medication that is FDA approved for SMA. Each dose she receives requires her to be in the hospital overnight.

  • Door Prizes
  • 50/50 Drawing
  • Food on site
  • Live entertainment
  • And more

 

Facebook Link: https://www.facebook.com/events/221502371757474
Organization Link:
Route Map Link: https://tinyurl.com/jaxsonmadisonroute
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